IT’S OFFICIAL

NATIONAL ME/FM ACTION NETWORK 
TO HOST INTERNATIONAL
IACFS/ME RESEARCH AND CLINICAL CONFERENCE
IN OTTAWA, CANADA
SEPTEMBER 22^ND TO 25^TH, 2011
AT CROWNE PLAZA HOTEL

FUNDRAISING HELP NEEDED FOR MAJOR PROJECT

The National ME/FM Action Network  needs your help for a major project -  the hosting of the International Association ME/CFS (IACFS/ME) scientific and clinical conference to be held in Ottawa in 2011.   Why?  Because it is an opportunity to have the best researchers in the world here in Ottawa, Canada to meet with our Government officials, Public Health Agency of Canada, Canadian Institutes of Health Research to advocate for more research and service funding for ME/CFS and FMS.

For the first time the IACFS/ME conference will be open to presentations on Fibromyalgia and other forms of chronic disabling fatigue.  It is a huge undertaking.  The estimated funds needed to host this event are $150,000.  If any of you have contact with a philanthropist or business who may be able to assist with the fundraising and publicity required,  please offer your assistance to the Network at http://www.mefmaction.net  And if you think you might be able to make the trip, start saving now.  There is always a full day program for patients and patient advocates the day before the scientific program starts (September 22^nd, 2011)  and patients are welcome at the scientific proceedings.  At the IACFS/ME you are truly not alone.  Information will be posted on our Network’s website and follow ups will be sent through email, snail mail and our QUEST newsletter.

Other ways you can help

• Hold a collection at support group meetings;
• Support groups could hold a garage sale of items members bring;
• Gently-used clothing could be collected and sold;
• Ask relatives and friends to contribute;
• Ask in memoriam donations be made to the National ME/FM Action Network;
• Those who can work can ask their employer to make their charitable donation to the National ME/FM Action Network;
• If you make donations to other charities, consider the National ME/FM Action Network and ask relatives and friends to do the same;
• If you give to the United Way, specify you wish your donation to go to the National ME/FM Action Network;
• You can also donate through http://www.CanadaHelps.org;
• If you are not a member, please join us.  Our membership includes our quarterly newsletter “QUEST”
• Let your imagination explore the ways you can donate.

Each one of you can make a difference and remember that all donors get a charitable receipt.  No donation is too small and is important.

Some Facts About IACFS/ME Founded in 1990, it is the only international professional organization (500 members) dedicated to scientific advocacy and improved patient care in the area of ME/CFS.and FMS. It has held biennial international conferences since 1994 It  publishes an online peer review professional journal (quarterly; Bulletin of IACFS/ME) and an online newsletter (3x a year) with timely and important information for researchers and clinicians interested in ME/CFS http://www.iacfsme.org It is developing a track record to increase recognition of ME/CFS worldwide. n 2007, it presented a 2-day conference (1 day for professionals; 1 day for patients) in Oslo, Norway that resulted in increased government recognition and funding of ME/CFS programs.   For more information on IACFS/ME, please visit its website at http://www.iacfsme.org

Dr. Fred Friedberg, IACFS/ME president

NATIONAL ME/FM ACTION NETWORK

Lydia E. Neilson, M.S.M.                                       Margaret Parlor
Chief Executive Officer                                         President

January 2010

• Presentations applications & updates

• Open letter from Dr. Fred Friedberg - president of IACFS/ME
  

• complete the donation section of our membership form 
• designation your United way donation to the National ME/FM Action Network
• phone:   613-829-6667   
• fax: 613-829-8518
• mailing address: National ME/FM Action Network
                                512, 33 Banner Road
                                Nepean ON  K2H 8V7
                                Canada
  
  
• Please click on the Canada Helps Logo to Donate to the National ME/FM Action Network.  Tax receipt for charitable donations can be printed immediately.