Quest
Our newsletter "Quest" keeps our membership informed of medical, legal, and advocacy issues. We are always busy looking for the best topics and news to bring to our members.
Overviews
The Overviews of the ME/CFS and FMS Consensus Documents were written and published by Dr. Bruce Carruthers and Marjorie van de Sande. These user-friendly guidelines will further assist busy practitioner.
Our primary focus is to get the Overviews in the hands of as many doctors as possible. We ask that everyone across Canada help us. Support groups and societies could use funds to distribute copies of the Overviews to doctors in their area. Individual patients and interested others could buy an extra copy to give to their doctor. Let us know what you or your group is doing in this area so people are not duplicating their efforts.
Consensus Documents
The ME/CFS and FMS Consensus Documents with clinical criteria and treatment guidelines are medical milestones.
Our prime focus is to get these documents, which can be considered as "one-stop" manuals for clinicians, into medical libraries, hospital and to medical associations.
The Myalgic Encephalomyelitis Association of Ontario has been doing a wonderful job in this area. Please keep us posted as to what you and your organization are doing.
Proceeds From Educational Resources to go Towards Sending Overviews to Physicians.
We are most pleased to announce the addition of new DVD educational resources:
Dr. David S. Bell
Seminar on ME/CFS with emphasis on the role of the blood and heart.
Dr. Kenny De Meirleir
Full day physicians' workshop on ME/CFS includes 4 DVDs and a CD.
Dr. Kenny De Meirleir
Patients' lecture on research advances and treatment of ME/CFS.
Dr. Pierre Flor-Henry
Physicians' lecture on the qEEG studies (current density source)
& psychophysiological studies (very technical)
The National ME/FM Action Network would like to extend our sincere thanks to Dr. Kenny De Meirleir, Dr. David S. Bell and Dr. Pierre Flor-Henry for their generous donation of their time and expertise that helps make these projects possible.
See Resources for more information.
Rosters
Doctors' Roster
Our roster of doctors across Canada who knowledgeable about ME/CFS and/or FMS is an ongoing project. Please assist us in keeping it up-to-date by letting us know of doctors knowledgeable about these illnesses. You may contact us for a doctor in your area. It is most important that we get the Overviews of the Consensus Documents in the hands of as many doctors as possible so that they will be able to diagnose and treat patients confidently and appropriately.
Lawyers' Roster
Should you require a lawyer who is knowledgeable about FMS and/or ME/CFS, you may contact us for a lawyer in your area. Again we ask your assistance in helping us keep this roster up-to-date. If you know of good lawyers in disability law who are knowledgeable about FMS and ME/CFS, please let us know.